Feda Almaliti and Mu, A Severe Autism Nightmare

Feda Almaliti and Mu, A Severe Autism Nightmare

“Autism was becoming a fatal condition for me.” Karen said that a dozen years ago when Ben and we were the subjects of an episode of the radio show, This American Life. It was about Ben moving out of the

Severe Autism Makes EVERYTHING Complicated, Including a Parent’s Hospital Stay

Severe Autism Makes EVERYTHING Complicated, Including a Parent’s Hospital Stay

Today, I feel incredibly lucky. Here’s why. It is not because I just spent six nights in a hospital bed wrestling with nasty cellulitis and emerged victorious. Happy, sure, but that’s not why. Not because I have a good job

Family Affair

Family Affair

Memorial Day weekend brought a bunch of Ben’s Aunts, Uncles and Cousins for the long weekend in Cleveland. Ben alternated between happiness (we think he loved it when everyone descended upon his house) to loud annoyance (he does NOT like

Would Removing Our Son’s Severe Autism Really Be Best?

Would Removing Our Son’s Severe Autism Really Be Best?

For the second time, John Elder Robison has given me new insight into my severely autistic son, Ben, and I’m not sure I like it. The first time was nine years ago, through his first book, Look Me In The

With Severe Autism, Just Getting Sick is Complicated

With Severe Autism, Just Getting Sick is Complicated

I remember my dad advising me about doctor’s visits, especially to be as specific and thorough as possible when describing symptoms — good, solid and maybe obvious advice. Like so many things with severe autism, “obvious” is a luxury unbestowed.