Ben and Jake are 30!

Ben and Jake are 30!

John Lennon said it best. “Life is what happens to you while you’re busy making other plans.” Our boys turned 30 this week, and never was an event more perfectly mantra-made.

Severe Autism Makes EVERYTHING Complicated, Including a Parent’s Hospital Stay

Severe Autism Makes EVERYTHING Complicated, Including a Parent’s Hospital Stay

Today, I feel incredibly lucky. Here’s why. It is not because I just spent six nights in a hospital bed wrestling with nasty cellulitis and emerged victorious. Happy, sure, but that’s not why. Not because I have a good job

Family Affair

Family Affair

Memorial Day weekend brought a bunch of Ben’s Aunts, Uncles and Cousins for the long weekend in Cleveland. Ben alternated between happiness (we think he loved it when everyone descended upon his house) to loud annoyance (he does NOT like

Happy Ben = Happy Mother’s Day

Happy Ben = Happy Mother’s Day

This weekend, Ben was relaxed and in a great mood pretty much every minute — which Karen said was the best possible Mother’s Day present.        

Would Removing Our Son’s Severe Autism Really Be Best?

Would Removing Our Son’s Severe Autism Really Be Best?

For the second time, John Elder Robison has given me new insight into my severely autistic son, Ben, and I’m not sure I like it. The first time was nine years ago, through his first book, Look Me In The

With Severe Autism, Just Getting Sick is Complicated

With Severe Autism, Just Getting Sick is Complicated

I remember my dad advising me about doctor’s visits, especially to be as specific and thorough as possible when describing symptoms — good, solid and maybe obvious advice. Like so many things with severe autism, “obvious” is a luxury unbestowed.

Our Daily Reminder

Our Daily Reminder

The headline is, The Frighteningly Few Housing Options for Adults with Autism. Stories with similar headlines are becoming an almost daily occurrence. At least the crisis is being publicized even if we are currently light-years from solutions. “Autism Awareness” now