Ben’s Sunrise

Ben’s Sunrise

Four years ago today, November 8, 2016, brought one of the worst nights of my life. It took 1,460 more to get us to last night, bursting with endorphins. Yeah, sure, it’s darkest before the dawn. But good lord, it

Finally, A New President for Ben!

Finally, A New President for Ben!

4 years ago, we were starting to transition Ben from saying “President Barack Obama” to Hillary. Then the crash. We went right back to Barack! We could never stand the idea of the T-word coming from his mouth or lodging

It’s Ben Again!

It’s Ben Again!

We are REALLY looking forward to Tuesday, November 3rd. We are pretty certain it’s going to be a joyful day, the kind of day we have been looking forward to for many, many months. What? Are you afraid I just

Feda Almaliti and Mu, A Severe Autism Nightmare

Feda Almaliti and Mu, A Severe Autism Nightmare

“Autism was becoming a fatal condition for me.” Karen said that a dozen years ago when Ben and we were the subjects of an episode of the radio show, This American Life. It was about Ben moving out of the

Dozens of Disability Leaders Decry Cancel Culture at the New York Times

Proud as heck for my signature (in typeset) to be among those of the best brains and hearts in the worlds of autism advocacy, treatment and research for this HUGE issue. Anyone who knows me (in person or virtually) knows

Another Year

Another Year

Hey Ben, what flavor birthday cake do you want? “PINK!” Happy 27th Big Guy!

Ben and Jake’s Greatest Father’s Day Gift

Ben and Jake’s Greatest Father’s Day Gift

Among the cruelest of the cruel realities of severe autism is what it can do to relationships with siblings. In that, our twins, Jake and Ben, unfortunately, are not unusual. By the time they were toddlers, their paths were diverging.

The Beard

The Beard

Because of corona, we haven’t been able to see Ben since early March. That means Mom hasn’t had access to his chinny chin chin. And that means Ben has been growing a beard. Not that I mind one bit. I’m

Greetings, Ben-Style

Greetings, Ben-Style

We just received a new email from Ben (with big thanks again to Justin for facilitating). We detect a theme: Email mom Hi mom How are you Ben is fine Ben had dinner Ben had breakfast Ben had a snack

Mother’s Day Delivered

Mother’s Day Delivered

Michele, one of Ben’s favorite people, just dropped off the Mother’s Day card he signed this morning. Yes, I know the pic is upside down. His first “signature” are the scribbles. “Oh Ben, you can do better than that!” said