Thanks again Amy Fisher Lutz. With Ben’s twin, not autistic, I do always ask him if I’m going to reference him in a piece. Ben? It’s silly to imagine asking him such a question if you know him. Hey, if anybody needs Ben’s permission for me to write about him, easy. I’ll just say to Ben, “Is writing about Ben OK?” He’ll repeat back “OK?” Done.

“I think that if your child is capable of giving permission—of understanding what’s been written about him or her and the breadth and permanence of the Internet—then yes, you should ask first. But what if, like my son, he isn’t? What if that’s kind of the point?” https://www.psychologytoday.com/blog/inspectrum/201601/censorship-in-the-name-privacy

Lutz: Censorship in the Name of Privacy